Friday the 13th was 11 months since I had my transplant, and a month from that day it will be a whole year and I have yet to put everything I endured in one place. Maybe I'm afraid to because I will cry while writing it all out, maybe I will scare someone, or give someone else false hope since I did survive a dual-organ transplant involving the most vital organs in the body besides the brain. The truth is I remember the call, and some things several month later because I had so many complications!
The call was not the "magical" moment I thought it would be, in fact I was alone and terrified but also at peace in some weird sense! I cried for my donor a lot, alone, and talked to them ... I thanked them for everything because even if I didn't live through the surgery they had donated their organs to try to save my life. It was a Saturday around 12:30 AM, I was awake which was strange because usually I was so exhausted and fatigued I'd fall asleep around 9 or 10 if I hadn't slept the day away. I was getting ready to color in my coloring books, and just try to calm my mind. I had no idea what was coming and whereas other people feel they may have had a "feeling," to be honest I just was really worried and wondering what death was like. Some things happened that week and to be honest I was making a decision about giving up, and trying to figure out what it would be like to die, to leave my family, and how they'd celebrate my life when it was over. I was over thinking and stressing out. I was not expecting a call, which is what made it so magical in it's own sense. Courtney was my nurse, and she's as meek as a mouse. She barely talks, I mean one time my face was bleeding (I used to get these open sores on my skin due to my liver dying) and she walked up right next to me as I was crying in the bathroom covered in blood. So when she walked in my room with the phone in her hand, I to be honest thought she was talking to her husband and thought I was going to be asleep so it didn't matter (now I know that was my brain trying to not understand or accept what was happening ... what nurse is on the phone checking on people?)! She told me the transplant team was on the phone and my first response was with a major attitude "what do they even want" to be honest with you I was kind of annoyed they'd request something after midnight even if they'd never done that before. It didn't hit me until she put her hand on my back and said "Erin, the team needs to speak with you" and I looked at her and my eyes welled up with tears! This was the call, the actual call and I was unprepared and almost rude about it. How ungrateful. It was Amy who spoke first, "Erin, we think we have a heart and liver for you but the donor is high risk" and then she listed off the reasons they were high risk ... while I remember the words it was like a blank, she gave me 5 minutes to think about it but I didn't need 5 seconds, those organs were mine. Not in a mean way, or even greedy way, but something in my soul leaped, they'd come ... they'd finally come! I was left alone and that is when a conversation started that I haven't ever shared!
I started talking to my donor. I first of all prayed. I then just started apologizing, apologizing that our lives intermingled this way, apologized they they were not here anymore even if their body was, apologized for all they'd lost, and I apologized for all I would gain on their behalf. I sobbed and sobbed until tears would not come out anymore ... and then my mind and body went into overdrive and for some reason I had to pack my room. This wouldn't be real if my stuff was here, if my family had to pack it up, because I knew I could muster the strength to do so, if it was the last thing I did when my family arrived I would have that room packed and I darn near did! I skipped the calling of Andy and my parents ... that is a personal part that well I like to keep to myself ... my mom brags a little about it ... but to be honest I will never forget the joy, fear, and love I felt from all three of them on that morning! I wrote them each a letter, so they'd have something to hold ... something if I didn't make it ... I wanted them to have something ... because let's face it when they take your heart out ... you never know if you're coming back!
I remember when they all got to my room, how tired everyone was ... the manic phase wore off and we were all beat, so I laid in the bed with Andy and watched them ... I listened to every sad or sorrowful song I could and cried, memorizing their features. The way my dad's eyes crinkled like mine do, or the way my mom's eyes are like my grandpas, or the way Andy's eyes spark when they see me even if he's just looking at me for a second. I tried to map out his face. Every feature, for I had 33 years to memorize my parents but only 6 1/2 to memorize his! I thought about my friends and wished them love and wellness. I hoped they would all wake and be happy for me, but I wanted them to think of my donor's family more than mine. I really just wanted my family to be alone and sadly that didn't happen but that is a story for another day.
Then it was suddenly time to head down, and one of my favorite nurses at the time Bernie went with me, I stayed brave on the ride to the elevator. I kept wanting to take another minute to hug my family, I didn't hear the clapping or cheering ... I didn't want them to walk behind me ... even though they had to. I wanted to hold on to this moment because it might be the last one I got with them. When those elevator doors closed I cried inside but stayed brave, I would not cry. I didn't cry. I allowed myself to disassociate from everything, this was no longer about me, this was a mission. I allowed Bernie to pray and she cried, and when she left I started to tear up but that is because they couldn't get lines in and it hurt. Then all I heard was "nighty night" and I didn't wake up for months (I did but the medication was so strong along with the pain I don't remember anything)!!!
I would say my first solid memory is my mom's birthday, which was a month and a half later, I remember bits and pieces and it is scary what I do remember. I remember trying to sign a card, my dad showing me her gift, and being sad we were in the hospital. I know I cried and apologized and did the same on Mother's Day. I think I cried quite a bit due to the steroids. I know whenever I did wake up, I couldn't move my legs (they had atrophied) and hardly move my arms, and since I had a tracheotomy I could not talk. I was paralyzed and silent which has been my worst fear. It was horrific. I ended up having several complications, including bleeding, an ulcer, and a double hernia repair and that is just the major ones. I do remember by my birthday I could have a cherry ice from Rita's which was awesome because it was the only food I had on my birthday. I didn't get cupcakes or cake. I was just grateful for the cherry ice and everything was "delicious" even hearing the word come from my mouth makes my stomach hurt now. That is what I haven't explained to people that PTSD (post-traumatic stress disorder) is a real thing after a major operation like a dual-organ transplant and that doesn't mean I'm not grateful to be alive, it just means that surviving left scars not only physically but emotionally. It was very scary so many times, and the last time when I had pneumonia I literally wanted to give up, and I think had another complication happened I just might have. I told God it was enough, that while He may believe I am strong enough to handle all this, I didn't think I could and I begged Him to stop. I'm grateful that He did, maybe He knew I would be too tired, maybe He listened, or maybe it was just the last complication I would be having but it was the final one before I started to get well.
I remember my first week back to rehabilitation after having pneumonia and how defeated I felt, like a failure because I was back to where I was when I first got there. I couldn't walk yet, my arms hurt with everything I did, and they expected me to wheel myself around in a wheelchair and learn to get to the bathroom on my own. Of course they didn't expect this overnight, but I did. I was defeated every night when I had to use a bedpan (sorry if this was too graphic but it was my life for months), defeated when I woke up and would have to wake to be put in swing to get to the portable toilet next to my bed. It took at least a week for me to stand with a walker without wobbling, another week to take a step or two, and then I was walking with assistance and then with little assistance. I left using a walker and now I don't need anything to walk. I'm not as strong as I want to be but I'm working on it. The best thing is I made it out of there alive, and I have the chance to get well, because someone gave me a second chance. They checked a box on their license without thinking they'd be a donor at a young age, their family agreed, and because of that I am alive. I'm not where I want to be but I have the chance to get to where I want to be because of them. While parts of my story are mine and personal, others are worth sharing and my second chance is surely worth it!
I hope you are organ donors, and if you aren't please leave a comment explaining why (I won't judge you but I do want to open the conversation)! I think that you have the right to choose what to do with your body, but please remember at least 22 people die daily waiting on organs, and I'm sure they'd love you to save their life and be a hero!
I love giving gifts and I love receiving them but truthfully with everyone having different tastes or medical conditions it has become harder to give gifts of food. Someone allergic to nuts could not have this beautiful gift but if the person is a diabetic (like myself) this would be the perfect gift for them. I love to eat nuts, of every type so this gift is something I love and enjoy. These are great snacks for me to eat especially when my sugar is in the normal range and I need something to keep me full until my next meal.
Now, my pictures look a lot different from that online because my mailperson either shook the package, or threw it but that can happen during shipping and I realize that it doesn't take away from the delicious flavor inside of the box! I realized this when I went to look at the reviews and saw that other people's boxes were perfect and I was glad to know it was a shipping error. I knew the flavors would be great, and I could deal with a little bit of a mess! Now if you were sending this to a boss, someone special, etc. then you'd want the shipping to be perfect so I hope this doesn't happen to you.
What I love about this box is that it came neatly packaged and wrapped. It contains 12 different varieties so if you were getting this for a family, it would have something for everyone. My favorites are the Brazil Nuts and Cashews. I also love the wooden box which can be used even after all the delicious treats are gone. You know for the price this would be a great sampler to have if you like to bake because you get so many varities of nuts! You get almost 2 pounds of nuts! I did the math!
I did taste every nut and I was surprised at how good they were! I really wished everyone was wrapped individually but even if it wasn't I believe the shipping error is why everything was so jumbled up but I did like the flavor. Most of the items are salted, the Corn Nuts were BBQ, and the Peanuts had a special spice blend tha was very good. I really liked this gift box because it really does have something for everyone. I would send this to anyone knowing it is going to work for anyone who is on the Paleo Diet, who is a diabetic, or who has to have gluten free foods.
If you'd be interested in getting this great Gift Box for someone you know, or for a business you know, or for yourself then click the link. You will not be disappointed!
I love makeup!
I wear it a lot and use a lot of different makeup products on my face. I don't have a favorite product or color, because I love to change up my look. What I don't love about makeup is germs!
If you use a beauty blender it not only absorbs your makeup but it also absorbs your germs, and the germs that are laying around your makeup case if that is where you keep your blender. These germs go right back on your face time and time again as you use your blender (maybe this is the reason I have breakouts sometimes).
I have used disposible sponge blenders but usually I don't throw them away after using them once. I also have used beauty blenders that you have to wash with soap and water and I don't know about everyone else but I constantly wonder if they are really getting cleaned. My makeup usually stains the blender and I often wonder if there was another way to clean the blender that would not only get all the makeup off but also the get rid of the germs.
The silicone blender solves this issue and really works as a blender for your foundation, concealer, highligher, etc. This blender tool can be cleaned with alcohol and soap and water and it will be 100% clean which is great since I have had a transplant and I have to be weary of germs. I was shocked at how well it actually worked! I had heard about the whole using a "breast implant" fad and thought it was crazy but I did watch the videos and these people were blending like crazy and it looked amazing!
I would not have put a breast implant on my face but when I found these Silicone Blenders I had to try them and I am so glad I did! I really like the way that my foundation went on using the blender and how easy it was to blend the foundation. It looked amazing and I had no streaks or lines. My concealer which I use after foundation (I know a lot of people use it before foundation) really shocked me. For the first time in my life it covered my dark circles and red spots! I was shocked! I really am happy with this blender sponge and it will be the only sponge I will be using from now on!
When I posted this on my personal Facebook page a lot of my friends were curious about this blender sponge and so I want to offer a giveaway, that way at least one of my friends can try them!
Giveaway is open to US Residents only! 18+ only! Winner has 48 hours to repsond and after that another winner will be selected. Ends 1/17!
When I started this blog I made a decision to do things differently than I had before. I wanted to change the way I blogged, and not rely on my RSS Feed all the time to get my blogs out to my friends (readers)! I wanted them to feel like I was writing to them personally, because I would be. I wanted them to never feel like I was spending them spam on a daily basis since I have planned to keep the blog posts coming on a daily basis!
I started to look at the things I used to do, that I didn't personally like. I always sign up for my own newsletter, that way I know exactly what is going out to my friends and can make sure there are no errors, or that nothing is going out to my friends that I wouldn't want to! I read every newsletter and before this blog, they were always just the RSS Feed of my blog. Which after awhile gets pretty boring because it's just the same newsletter everyday, usually at an odd time like 4 AM!
I thought long and hard about what I could do to make this blog different and then it hit me, I could send out a personalized newsletter every weekend, with update, links to giveaways or reviews, and well it would be written from my perspective instead of some auto-bot! I could put pictures of whatever I wanted, write what I wanted to write, and even give away extra ways to gain an entry or two into my newest giveaways! I could write to my friends, which is what is most important to me with this blog. I love the connection being a blog writer has brought me, I can write about things that are important to me and others can relate to these things and not feel so alone. That is what I want for my friends, to not feel alone.
My newsletter will help me do that! If you are interested in getting a personal message from me weekly (it may be bi-weekly) and sometimes I may write a special message only to those who want to be part of my "Newsletter Club" (I thought it was cute) then just go to my sidebar and enter your email. I promise there will be no spam from me!
I'm very excited about my very first giveaway on Lady in the Home! I have been planning this giveaway for a while now, as I love Origami Owl (it doesn't hurt that my husband happened to be a designer) and wear it constantly. I love how it truly has something for everyone, whether it be a locket on a lanyard, a watch with charms, a beautiful necklace, etc. you can customize everything; whether it be the type of locket, locket shape, charms, or type of chain (pictures below).
I love that the lockets are also beautiful and unique. They have different shapes and sizes, whether they come in gold, silver, rose gold, black, and you can even get them with Swarovski crystals (which also come in different colors)!
I've decided to give away a locket, with a necklace, plate, two dangles, and five charms!
It is valued at $130!!
Winner will be announced on the 18th of this month!!!
You can enter as many times as you want by leaving a comment on any blog posting or sharing this giveaway!
Good Luck Everyone!
Recently I saw something where people had posted 17 things they would change, want, or expect from 2017 and I thought I would join in and share my own list on my blog!
I hope you find some inspiration and if you post your own list please share your link in the comments and I'll come by and read your list and wish you the best!
Here is to a beautiful New Year full of love, health, and wealth!
Do you love Amazon.com? I do! I have been a Prime Member for almost two years and I love the many aspects of Amazon Prime and Amazon. This is not a sponsored post, I just love Amazon so much and have some exciting news to share with you about how you can get $5 off any purchase on Amazon! I wanted to share, I love saving money, couponing, getting freebies so when I saw that I could share a $5 off coupon with my friends (as you know I call every reader a friend) I really wanted to post a blog about it!
I am very excited about this Book Giveaway, it's growing constantly and I'm the 50th blogger to participate! I will be giving away my new favorite book (don't give away the ending I haven't finished yet) called "The Girl on the Train" which is pretty full suspense! I really enjoy reading it and it's my last book for a while because I have to start a new book for school on the 9th. I'm trying to read it before school starts but I will make an exception because I want to know what will happen! I'm very excited to be joining these other bloggers! Come back to this blog posting on the 19th for your chance to win!
If the Linky does not work, please go to BookHounds to see the completed list!
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Aesop was surely correct when he said this! The sad fact is in 2016 I learned this lesson the hardest! I was rallied around when I was in the hospital, when I was living in the hospital I felt lonely in the disease but supported emotionally. Everyone offered for me to call them and talk, or text, or message; I was constantly getting messages daily asking how I was doing and letting me know they were thinking about me and praying for me. I was overloaded in love and support! I got used to that feeling!
I knew it would dwindle when I received my transplant, it would of course get stronger if I had complications (which I did) and even if I got sick (which I did) after my transplant and had to be hospitalized. Yet, what I didn’t expect was for someone I wrongly considered my best friend to walk out of my life for a stupid reason. I’m sure they didn’t think it was a stupid reason. I would like to think they were thinking without using their head or their heart and assumed that I would hurt them!
There is no truth in that! After my transplant I don't have the time, space, effort, or energy to hurt anyone and the fact that this person did not know that I would have never hurt them, really hurt! I realize there is a reason they walked out, and I will not need them in my life even if they apologized. I have already forgiven them in my heart but the way they walked out of my life was disgusting and I think most people would agree! They were with me in the beginning of this, they would be on the phone with me for hours when I cried about when I found out I would need a dual-organ transplant, they helped to talk me through the choices and fears, and I honestly believed they'd be there for my recovery.
I was shocked when they blocked me on Facebok without a word, a message, a text, a big ole "F&%K you!" because I thought we were closer than that or more mature than that, at least. I truly couldn't believe this person who I had told my deepest secrets to, considered a sister, and really believed was a forever friend just blocked me! I actually noticed because I went to send her a facebook message telling her I was home and seeing when she could talk because I was so excited to feel good enough to talk to my best friend about everything I had endured! I wanted to make sure she had time because she has children. I will never forget looking at my mom as the tears welled up in my eyes and I didn't understand, so I texted her. I had hoped maybe something really dramatic had happened and she shut her profile down, she surely wouldn't block me as I just had gotten out of the hospital only 2 days ago! I had lived in the hospital for 7 months, I had not talked to anyone on the phone but her, and three other people the entire time I was there. I was too tired, and these people didn't put any added stress on me. They knew I didn't care that someone got married, or was getting a divorce, or cheating , or whatever gossip people brought to me before my transplant (now I flat out tell everyone that I don't want to hear it)!
I then started getting messages asking me what was happening! I didn't hear back from her when I texted her so basically I asked what the people messaging me/calling me had heard and I started getting screenshots and I literally could not stop crying. I was also on a high dosage of steroids so I was extremely sensitive and couldn't hold myself together. I was being called all sorts of weird names, and things were being said about me that were really untrue. I then was told by someone who I hardly knew (my "friend" is a blogger so she tends to have very personal relationships with people she doesn't even know) that she was mad at me for adding a relative she did not trust or speak to.
First of all, we both went to the same high school and this said relative wrote me and told me they didn't want any trouble and had heard I was very sick and wanted to pray for me. I had no intention of becoming close with this person (even though we have now which is amazing because she's a great person, mother, woman of God, and I'm happy we are close friends but had my "friend" stayed in my life my relationship with her relative would have had no bearing on my relationship with her), but I didn't want any unneccesary drama, and let's face it I had almost died so I really wasn't in the mindframe to turn people who wanted to pray for me away! I was just grateful another person was willing to pray for me. I truly can't believe the person I considered my best friend deleted me for something so petty.
Look, I hardly have family! I have cousins who I don't speak to, aunts, uncles, etc. who I don't speak with and who have many friends of mine on their Facebook pages. Do I know if they talk, or just comment here and there? Do I know if my name is mentioned, if they constantly update my relatives about what I'm doing? I honestly do not have time to care if they do, and I thought this person would have realized I would have never said a word to their relative about them. I would not have spoken to either about the other. I honestly think this is a cop out reason, and I really did when I received a letter from a third-party (who NEITHER of us know in person) telling me all the things I did wrong. I again thought this person was mature enough to send me a direct message (she could have blocked me right after for all I cared) but to send it through a third-party who neither of us know (it could have been someone who was pretending to care about her). What honestly hurt was she also blocked my mom, who did nothing to her! This third-party also told my mom about the situation the day it happened (about my my so-called friend who was now angry at me for adding their relative) and then was angry at both of us (my mom and I) for talking about this situation since I had asked this third-party why my "friend" would not speak to me (now remember her daughter was crying after having a dual-organ transplant and almost dying more than 7 times, her child who had spent almost 3 months in the ICU, learned to walk again, feed herself again, talk without a trach, breath without a trach, and so many more things that a parent should never have to watch their child endure so forgive my mom for caring enough to try to calm me down). I was shocked when this third-party sent me a letter from my "friend" a few days later and then blocked me but not before telling me they believed my friend was correct in her decision and that I was a horrible person. I honestly did nothing to this person, who did not know me enough to tell me anything about myself, as I had only added them right before my transplant surgery thinking they would be praying for me.
What hurts the most is not my friend walking out of my life, as I have realized when people do this they aren't really there for you or to care about you. It is the fact this this person could not speak to me like an adult, I would have cried and been emotionally hurt by them telling me everything but I woud be able to respect them as a person now. I can't respect anyone who hides behind a computer screen. I also lost a lot of respect because this person is nothing like what they seem to be, they talk constantly about compassion and understanding but showed me none of this. They wrote statuses that were public for months about me, and still sometimes mention me, it really is sad and pathetic when you think about it. I'm surprised I feel for their crap for such a long time, they don't care about anyone but themselves and are one of the most self-centered people I know. You can't write about being an empath (I am one but that is a story for another blog) and say negative things about people, I don't believe I have said anything negative about her in this blog I am just telling my side of the story. I would never call her a cuss word, talk about her parenting, or lifestyle, etc. I am hurt by her actions especially not talking to me and talking about me (especially to people who didn't know me and wrote horrible things in the comments and she could have said something like "Hey I'm being harsh but you don't need to be" but she just let them call me horrible names. I finally had to delete people who were sending me screenshots because I would end up crying for hours. Not because I'm weak but because I was in the process of recovering from a surgery that almost took my life, dual-organ transplants aren't a joke, they are a major surgery that very few people will ever need to experience and she had the nerve to do this when I was only out of the hospital for two days.
I really hope one day she thinks about what she did and how she acted and I hope she realizes this was such an ugly side of her. I really hope she knows how horrific she looked during this, and I even reached out to her friend who happens to be able to be friends with us both and tell her that honestly I was tired of hearing about it but it was even worse that people we grew up with would be talking about her character. Most people just stayed on her page because she truly just embarrassing herself. I refused to laugh with them, and when something happened to her or happens to her and people write me and let me know, I don't think it is funny. I even wrote to tell her friend that I had blocked someone who was making fun of her having a medical condition she couldn't afford to take care of and to please let her know I wasn't involved in this. I don't want to be involved in anything that hurts her, I just needed to finally get this out of my system so I can finally close 2016 and stop being afraid everyone is going to hurt me. I only reached out to her friend because she's blocked me on all sites and she's known to threaten to have the police called when you try to talk to her like an adult and I didn't need that stress this year. It's been 7 months since we have spoken and it will be 7 decades (we will both most likely have passed by then) until I'd ever speak to her again. The pain she caused me this year was something I can forgive from afar but I would never be able to have a conversation with her. I am glad I could vent about it and leave it behind. Sometimes realizing that people hurt you but that doesn't mean everyone is bad is so healing. I thank you for listening.
My question to you is, have you ever had a fake friend? What happened?
I guess with an introduction ...
My name is Erin ...
I'm 34 years old (I will be 35 in April) ...
I'm married to a wonderful man ...
I have amazing parents ...
and in February of 2016 I had a heart and liver transplant ...
That is what I really started this blog for ... as a place to document my "delicately disastrous" life and how I'm doing now that I have been transplanted! I was born with several Congenital Heart Defects and endured quite a bit to survive up until my transplant, since I was born with these malformations of the heart this is a whole new world for me.
Double Inlet Left Ventricle
d-Transposition of the Great Arteries
My first pacemaker at 9 and then a replacement at 22 years old. I have never known anything different, but in 2013 I learned I would need a heart and liver transplant. I had always expected a heart transplant, but figured I would be 45 or 50 years old before it happened. The truth is I thought I would die before needing one. When I learned in 2013 I would need both organs it was estimated that my body could wait 5 to 10 years before I would be even put on the list, but when I had a heart catherization and liver biopsy it was discovered that my Fontan (the live-saving heart surgery that re-routed everything when I was only 4 1/2 years old) was now failing and I was in Congestive Heart Failure and also I had Stage 4 Cardiac Cirrhosis. This happened late in 2014 and I felt so defeated because I believed the procedure could wait, it wouldn't have changed the outcome as there was nothing that could be done but still it was very defeating.
My mom was diagnosed for the second time with breast cancer in 2013 and I put off everything so our family could focus on her, I am blessed and happy to say she's in remission and doing wonderfully!
I didn't know what to do, or where to turn, or how to feel. How do you rationalize needing two organs, the process of getting on the list, and so much more. I ended up having to go several states away to be evaluated because no hospital in my area (I live in the Washington, DC Metro area and the hospitals are amazing here and very cutting edge but they couldn't do the surgery I needed to survive!) could do the surgery. I learned the surgery would be intensive and very complex and I might not even survive the first part of it to get to the actual organs going into my body. My Fontan which was already failing would be taken down, and I would have a surgeon internally make my anatomy normal, this in itself was extremely risky. I took in all the information and I knew the other option was death and compassionate care.
The truth is I had my heart set (no pun intended) on compassionate care, I was terrified to endure a dual-organ transplant and when I did the research and read everything I clammed up. I closed myself off to the idea and started talking myself into being content with death. It was my family who helped me realize that it was fear talking and the truth is I really did want to live, but I was scared and that was okay. I had to make a decision, whether I wanted to meet with the doctors in a different state and see what they had to say or if I wanted to choose hospice care. I had a lot of time to think, prepare, and rationalize because I had to stop working in 2009! The truth is I think quite a bit!
I called several different places that helped with compassionate care, and it scared me ... once I made this decision I had no other choice. Eventually, it would be too late to change my mind, my body would be too weak to survive a transplant! That is what scared me the most!
I prayed a lot ... I started reading my Bible daily, praying for hours, crying when I needed to, and trying to really make a decision that would help not only me but everyone else in the world too. I knew this would be a journey but I never believed it would turn out the way it did, and while I ended up having several complications from the transplant; I cannot ever regret the decision to fight for my life when there was not another option!
Around this time last year, I ended up scheduling an appointment to have a transplant evaluation at the hospital I ended up having the transplant surgery at. I didn't know if I would even be accepted in the program. The entire process took a week, and ended up taking months to get me listed. I started my journey with a lot of research. I read article after article about how risky the procedure would be, what would be needed from the donor (extra collateral blood vessels and many other things besides the heart and liver), and how the surgery was preformed. I scared myself into "fight mode" and realized when I walked in to that evaluation I was over prepared and knew most of what they were going to explain. I think this worked in my favor, because they had to realize that I was not only taking this process seriously but also highly educated about my heart condition, the deterioration of my body, and what a dual-organ transplant would entailed.
I ended up being listed 9/30/15 and by October I was moved up to a 1B which is the 2nd highest on the list, but it meant I could still live at home while I was listed. I would just get a call one day and have to get to the hospital within a certain amount of time which seemed like a good plan. I was still able to take care of myself without much help and I could still do things like go to doctor's appointments, grocery shop, and go to physical therapy. In November I realized I was quite overloaded with fluid (I had been hospitalized a lot for kidney failure/injury and I had just gotten out of the hospital in October) and when I went to the appointment out of state at the hospital (even though it was a doctor's office visit) they noticed too! They asked me if I minded missing Thanksgiving so they could get the fluid under control ... I had no idea then I would not be home until June 1st of the next year!!!
I'm Erin and I am the "Lady in the Home" in fact this name stems from being the only lady in my home. I have a wonderful husband and an amazing dog named Zeus. We are currently in the process of purchasing our first home, which we built. My blog documents my life in the home, as a college student, and lover of so many things. I had a heart and liver transplant Valentine's Day weekend in 2016, and so I also write about my recovery from that. I love to give my opinion about different things pertaining to our new home and if you work for a company that would like to be featured on this blog please email:
erinmriha (at) gmail (dot) com